I am a multi-disciplinary social scientist of life sciences and biomedicine. I joined the Science Interpreter Training Program at the University of Tokyo as project assistant professor in April 2017. Before joining the program, I was a research fellow at Science, Technology, and Innovation Studies (STIS), University of Edinburgh (UK) on the Wellcome Trust-funded research project Making Genomic Medicine, of which I am still a member as a visiting research fellow.
My current research studies the increased importance of ‘rare diseases’ both as a focus of medical sciences and as a concern for public health policy since the late 20th century. Through qualitative analysis of the history, I aim to understand the valuable contribution that patients / patient organizations make in devising solutions for their diseases as well as the sacrifice that they have to make in making such a contribution.